Young Ostomates United Inc
What is a stoma?
Stoma is the Greek
word for opening. Stomas are created
surgically for the removal of waste
products from the body.
A stoma is not a
Types of Stoma:
redirected from the Large Bowel
redirected from the Small Bowel
Anastomosis (J-pouch) - an
internal pouch formed out of the
terminal portion of the ileum
(technically not a stoma)
Ileal Conduit or Urinary Diversion
- tubes which drain urine from the
kidneys are implanted into an
isolated piece of small bowel
which acts as a tube to divert
Who has a stoma?
Anyone from a
newborn baby to the very old can have
a stoma ( ileostomy, colostomy,
urostomy ), people who come from all
walks of life, race and creed, in all
types of jobs, sports, and other
between 18,000 - 20,000 people with a
stoma. Individuals with a stoma are no
different from anyone else but simply
have a different or alternative way of
going to the toilet.
types of stomas are there?
A surgically created opening
anywhere in the large bowel or colon,
hence the name, Colostomy.
the small intestine or small
bowel is made up of the duodenum,
jejunum and the ileum. An ileostomy is
a surgically created opening into the
Also known as a 'Urinary
Diversion' or 'Ileal Conduit'. The
bladder, which is the storage vessel
for urine, is bypassed or diverted. A
piece of small bowel is used as a
conduit between both ureters to divert
the urine. The ureters are the small
tubes that drain urine from the
kidneys. The piece of ileum from the
small bowel forms a urinary stoma.
found in the Colon and Rectum. If the
cancerous tumour is very low in the
rectum, a permanent colostomy is
created. Temporary colostomies or
ileostomies are frequently created to
protect the anastomosis or join
following the removal of the area of
bowel affected by the cancer.
Ulcerative Colitis and
Crohn's Disease are
inflammatory bowel diseases which
are usually treated with medications
and dietary modifications. However,
a small percentage of people who
have these diseases require surgery,
resulting in ostomy surgery. The
most common type of stoma is an
ileostomy. The majority of people
requiring surgery for ulcerative
colitis have a temporary Loop
Ileostomy following the removal of
their large bowel and rectum. This
necessitates the creation of an
Ileo-Anal Pouch (i.e. a J-pouch).
Abnormalities (e.g.: Spina Bifida):
In Spina Bifida,
there are no nerves to indicate when
the bladder needs emptying. While in
this modern age few people have
urinary diversions for Spina Bifida,
there are many people who have had
this surgery, resulting in an ostomy.
Any of several
inherited diseases that are
characterised by the formation of
polyps in the gastrointestinal
tract. Surgery required is often
the creation of an ileostomy or an
Ileo-Anal Pouch (i.e. a J-pouch).]
Disease & Imperforate Anus:
These are other
congenital conditions that may require
a temporary or permanent ileostomy.
Usually trauma to
the lower part of the colon or rectum,
as caused through insertion of objects
into the area, gunshot, stabbing into
any part of the bowel or perforation
due to road accidents may require an
ostomy. These stomas are usually
temporary, however, if damage to the
anal sphincter is extreme, a permanent
stoma may be required.
If perforation to
the bowel occurs as a result of
diverticular abscess or is imminent, a
temporary colostomy is created.
There are many
other rare reasons for ostomy surgery,
but the above are the most common.
Whatever the cause, having an ostomy
does not preclude people from enjoying
a normal life. This is assisted by
being well educated, not only in the
care of the stoma, but also by being
emotionally well adjusted to the
(R.N.; Stomal Therapy Nurse)
What can I
expect following formation of a J
2017 we have added an information
sheet on "Frequently
Asked Questions Following Formation
of a J Pouch". Click on the
hotlink to access.
How can YOU
contact with the other ostomates
of a similar age group. Freedom to
discuss feelings and concerns with
By offering a
friendly visiting service both pre
and post operatively by a young
What YOU can do
provides members with a bi-monthly
newsletter and Calendar of
provides a telephone directory of
members whom are willing to
receive calls, so advice help or
support are always close by.
organises regular informal social
gatherings i.e.. BBQ's, Picnics,
Dinners, Weekends Away.
provides resource material to both
new and well-established
organises educational meetings on
various topics i.e.. sexual
provides a counselling service to
young people about to undergo
ostomy surgery, both pre and
supports worthwhile projects such
as World Ostomy Day, Stomal
Therapy Week, Network Ostomy
with the ostomy associations and
the major pharmaceutical companies
so as to keep abreast of the
latest research, information and
Each new member
for You" folder.
Practical Solutions booklet.
"Just for You"
What is YOU's
Its aims are:
support and reassurance to young
people undergoing ostomy surgery
(ileostomy, colostomy, urostomy),
before and after surgery, by
personal contact which will help
allay feelings and fears of
empathy and understanding with
To show by
action and behaviour that the
visiting ostomate is leading a
normal happy and useful life.
It is important to
realise that the Y.O.U. visitor is not
a qualified counsellor but visitors
have undergone a basic workshop on
counselling, organised by the
Professional Convenor of Y.O.U., and
follow the guidelines below.
ourselves we have all experienced the
trauma of this type of surgery and
feel strongly that the intending
ostomate should have the option of a
visit by a well adjusted ostomate of a
similar type and age.
It is the right of
every young person undergoing ostomy
surgery to be offered this FREE
If you would
like to receive a visit, e-mail
How is YOU
YOU is a
non-profit organisation that exists on
its annual membership fees.
So join up and
help the group continue its work.
Click here to
Are there Chat
Forums that I can participate in?
Chat Forums are an
easy way to meet people via the
internet. To visit an Internet Relay
Chat (IRC) area, you will need some
IRC software (eg. mIRC). Your friendly
Internet Service Provider (ISP) should
be able to help out, or you could
visit Tucows Australia.
Here are some Chat
areas that you may want to check out.
Set up by
Shaz from WA and Jason
Dale from the UK. "... the
best Ostomy Chat Channel on the
net"? Judge for yourself.
Chat does not require IRC. A nice
little feature is that if you find
that no-one is in the room, you can do
something else (like read email), and
you will be notified when someone
enters the room for a chat.
Stuart (who set up this chat site):
I am keen to
encourage new and experienced
ostomates to given and receive
support on their condition. In
particular I am interested in
encouraging new ostomates to chat
about their fears and anxieties and
The chat room is
not just for discussing ostomies
however, I would very much like it
to become a sort of cyberspace
coffee house where ostomates can
meet and discussing anything. Whilst
the site is titled UK Ostomy Support
it is not just for those of us in
the UK and it would be great to meet
up with fellow ostomates in
It is a bit fiddly
to set up (you need to be registered
with Yahoo before entering the chat
room, and you need to have get the
Yahoo Messenger software), but once
there, the people are nice.
If you know of
any other Chat channels to be
included here, e-mail Jane at
Are there News
Groups that I can join?
News Groups (also
called Discussion Groups) are a
central place for people to send
messages, or to reply to existing
messages (this can lead to some very
long and interesting message
News Groups can be
accessed via specialist News Group
Readers (your friendly Internet
Service Provider (ISP) should be able
to help out, or you could visit Tucows Australia).
Some Email programs also provide News
Here are some News
Groups that you may want to check out:
alt.support.ostomy newsgroup does not
seem to get a lot of use (i.e.. there
are not many messages), but the issues
are very relevant.
gets a lot of use, so much that it
takes a while to wade through all of
the messages. However, the number of
ostomy-specific messages is very
If you know of
any other News Groups to be
included here, e-mail Jane at
Any handy hints
Here are a few
tricks of the trade that might help,
as submitted by fellow ostomates. Feel
free to send in your own ideas and
hints, so we can all benefit from your
Eat a few
marshmallows about 10
minutes before changing
Wet a nappy liner
and place it over the
stoma. It will stick over
the stoma and protect it
toilets and change rooms
embarrassed to use the
change the appliance.
Bunching up at
the top of the bag
spray, or olive oil,
inside the bag lining, or
pop a tissue into the
bottom of the bag.
peristomal area with warm
water mixed with some
vinegar (a 1 in 10
September 2016 we've added information
sheets on "Colostomy
Irrigation" and "Travel
Tips from an Ostomate that Irrigates".
Click on the hotlinks to access.